Planes, trains and automobiles
I discovered the other day that it’s physically possible to fly in my condition. I don’t yet know if it’s
The most amazing carer of all
Mary is my wife, but she is also my most amazing carer. The other day I realised that in my
Keep on rolling
Most people celebrate their 25th wedding anniversary by having a big family party or going on a cruise. In 2007
Fun and games
I realise my recent blog posts have been a bit serious. Actually, I’ve a lot of fun with my carers.
The good, the bad and the ugly
Care companies come in all shapes, sizes and qualities. I’ve had excellent experiences, bad experiences and yes ugly experiences. Ugly
Home from home
“Help, mummy, help me.” The shouting had been going on so long I finally began to switch off to it.
Body mapping
Have you ever heard of body mapping? Neither had I before I was ill. My first experience of it came
Oops, I didn’t mean to say that
Have you ever said something and then realised it could be misunderstood? I find that happens all the time with
Kid’s Stuff
Why is it that so much stuff designed for the disabled are either called by baby names or have a
Everything happens at once
When I was well and, on my feet, I was extremely active. I never used to lie in bed in
My Amazing Wheelchair
I am fortunate to live in a country and a time with the NHS. It is a brilliant institution. Any
You look so well
“You look so well.” Those wonderful words that everyone with a life limiting illness or any illness really enjoys hearing.
The cot sides
I didn’t just wake up one day and find myself in a hospital bed with cot sides and carers. It
An odd request from Amazon
Wouldn’t it be great to have a shower again? That was the simple thought which started it all off. I
Care, a unique relationship
Care is a very strange thing. It’s a relationship that is very intimate. Only in medicine do we have equally
Shall we get in the bath?
“OK, shall we get in the bath now.” This was said by one of the two young ladies who were
Hello world!
“Hello world!” I was sitting naked on a commode with a carer either side of me. The bathroom was so
